The Hemophilia Treatment Center (HTC) is located within the Connecticut Bleeding Disorders Center at UConn Health. At the HTC, you and your family will experience quality, industry-leading care and individualized treatment. Whether you are new to the area, transitioning from pediatric care, or simply looking for a provider specializing in hematology, the HTC is prepared to be your provider for all medical needs.
As a full-service Hemophilia Treatment Center, we provide evaluation, diagnosis, and treatment for patients with bleeding disorders and coordination of multidisciplinary care, including:
- Dental health
- Genetic counseling
- Physical and occupational therapy
- Emotional support from a licensed clinical social worker
- Coordination of home delivery for clotting factor prescriptions and supplies
- Education and training for home treatment (self-infusion)
- Diagnostic laboratory testing
- Access to clinical trials and the latest treatments
Signs and Symptoms
The most obvious signs and symptoms of hemophilia are easy bruising and prolonged bleeding which may occur internally or externally. Symptoms depend on the type of hemophilia (A or B) and the severity of the condition. Conditions can be mild, moderate, or severe.
Mild hemophilia may have increased bleeding after accidents, surgeries, or dental procedures. However, severe hemophilia could result in bleeding spontaneously.
In many cases, there is no family history of hemophilia. It is important to recognize these signs and symptoms and speak to your provider about your concerns.
The diagnosis of Hemophilia is typically multi-faceted. This includes a personal history of bleeding, a family history of excessive bleeding or diagnosis, and laboratory blood testing.
Managing Your Diagnosis
It may be difficult for you or your child to take ownership or feel empowered following a diagnosis of hemophilia. The Connecticut Bleeding Disorder Center at UConn Health is here to help you maintain and improve your quality of life. We can assist in many other medical areas, including preparing you for dental procedures, pregnancy and childbirth, surgery, and other procedures.
Additionally, we are here to help you continue to enjoy your passions and overall lifestyle. Consult with us prior to travel, if you have a change in career that may impact your day to day job functions, and how physical activities can continue to be part of your day-to-day routine.
Some types of hemophilia require regular infusions of clotting factor that may be missing in the bloodstream. UConn Health can provide infusions at our state-of-the-art clinical facility and also train you to infuse in the comfort of your own home. We are prepared to review every possible option with you and ensure you are comfortable with your treatment plan.
Home Factor Delivery
Connecticut Bleeding Disorders Center now offers a convenient pharmacy program to provide factor and supplies to your home. Our program offers the same great service that other factor providers advertise, but because the proceeds from the program are poured directly into the HTC, you are ensuring our HTC will always be here to provide outstanding comprehensive health care to you and your family.
Our home factor program provides the following:
- UConn Health hematologist on call 24 hours a day, 7 days a week
- All brands of factor in a variety of vial sizes
- An extensive list of ancillary supplies at no cost to you or your family
- Shipments to your choice of location
- Coordination of in-home nursing service
- Mailable sharps container at no cost to you
- Insurance benefit counseling and assistance in signing up for co-pay assistance programs
Why Choose a Hemophilia Treatment Center?
According to a study completed by the CDC, “3,000 people with hemophilia showed that those who used an HTC were 40% less likely to die of a hemophilia-related complication compared to those who did not receive care at a treatment center.2 Similarly, people who used a treatment center were 40% less likely to be hospitalized for bleeding complications.” Learn more on the CDC website.
Mary Samson, A.P.R.N.
Kristin L. Mooney, LCSW