UConn Health makes available to our researchers a number of Information Technology tools, resources, and services to help facilitate the conduct of research. Below is a catalogue of these tools and services, along with descriptions, instructions and hyperlinks. We continue to add to the list, so please visit this page periodically.
|REDCap (Research Electronic Data Capture)||Electronic Data Capture, Case Report Forms||REDCap is an on-premise, secure web application for building and managing online research surveys and databases.|
|Qualtrics||Electronic Data Capture, Case Report Forms||Similiar to REDCap above.|
|dbGaP (Database of Genotypes and Phenotypes) Data Access||National data repository/database||dbGaP is an NIH-maintained database of datasets developed to archive and distribute the results of studies that have investigated the interaction of genotype and phenotype. Click here for more information and instructions on how to access and download dbGaP data|
|dbGaP Data Submission||National data repository/database||Please review carefully the dbGaP Study Submission Guide (https://www.ncbi.nlm.nih.gov/gap/docs/submissionguide/) and the “Submission into the NIH Database of Genotypes and Phenotypes (dbGaP) guide (first attachment).
Briefly, submission of study data into dbGaP is comprised of two phases: study registration and data submission. Data access occurs only after the data is successfully submitted to dbGaP.
Study Registration. A study must be registered before any study data may be submitted to dbGaP. Follow these steps to register the study:
If indicated in (1) or (2) above, obtain proper IRB approval.
Data Submission. After the Genomic Program Administrator has verified the Institutional Certification and uploaded the Basic Study Information and DUC into dbGaP, staff from the National Center for Biotechnology Information (NCBI) will contact the PI to discuss the next steps in data deposition.
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