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    Research Tools and Services

    UConn Health makes available to our researchers a number of Information Technology tools, resources, and services to help facilitate the conduct of research. Below is a catalogue of these tools and services, along with descriptions, instructions and hyperlinks. We continue to add to the list, so please visit this page periodically.

    Tool/Service Category Description
    REDCap (Research Electronic Data Capture) Electronic Data Capture, Case Report Forms REDCap is an on-premise, secure web application for building and managing online research surveys and databases.
    Qualtrics Electronic Data Capture, Case Report Forms  Similiar to REDCap above.
    dbGaP (Database of Genotypes and Phenotypes) Data Access National data repository/database dbGaP is an NIH-maintained database of datasets developed to archive and distribute the results of studies that have investigated the interaction of genotype and phenotype. Click here for more information and instructions on how to access and download dbGaP data
    dbGaP Data Submission National data repository/database Please review carefully the dbGaP Study Submission Guide (https://www.ncbi.nlm.nih.gov/gap/docs/submissionguide/) and the “Submission into the NIH Database of Genotypes and Phenotypes (dbGaP) guide (first attachment).

    Briefly, submission of study data into dbGaP is comprised of two phases: study registration and data submission. Data access occurs only after the data is successfully submitted to dbGaP.

     

    Study Registration. A study must be registered before any study data may be submitted to dbGaP. Follow these steps to register the study:

    1. Complete and sign the Institutional Certification appropriate for your project. Forms and instructions can be found here.
    2. Complete the Data Sharing Plan. See template here.

    If indicated in (1) or (2) above, obtain proper IRB approval.

      1. Obtain signature from the Institutional Signing Official (IOS) on the Institutional Certification (in #1 above). For UConn Health, IOS is Dr. Greg Gallo (ggallo@uchc.edu).
      2. This step will depend on the project. For some, the PI will send the institutional certification and study intake forms directly to the Genomic Program Administrator (GPA). For others, the PI will submit these documents to the the NIH Program Officer (PO), who completes the Data Use Certification (DUC) for each study to reflect the specific study name and desired Acknowledgement Statements. The NIH PO will then provide the PI with a copy of the final “model DUC” to help the PI and the submitting institution’s officials better understand the agreements that secondary users and their institutions must make with NIH to have access to study information through dbGaP. Finally, the NIH PO sends a copy of the DUC to the GPA, who submits these forms to dbGaP.

     

    Data Submission. After the Genomic Program Administrator has verified the Institutional Certification and uploaded the Basic Study Information and DUC into dbGaP, staff from the National Center for Biotechnology Information (NCBI) will contact the PI to discuss the next steps in data deposition.

    Help & Support

    Email: aits@uchc.edu