Endometriosis

What Is Endometriosis?

Endometriosis is a chronic, inflammatory uterine disease that causes severe pain both in the uterus and throughout the body. It affects 10 percent of women who are of reproductive age. It can take years to diagnose, and treatment can be challenging to access.

Danielle Luciano, M.D., operates on a patient with endometriosis

Coming Together to Fight Endometriosis

UConn Health and The Jackson Laboratory are leading the nation in endometriosis care and research.

In 2022, Connecticut passed a historic bill to create a state-wide endometriosis research program, including a first-of-its-kind endometriosis data and biorepository program. The program is located at The Jackson Laboratory and managed in coordination with UConn Health.

Danielle Luciano, M.D., interim chair of the Obstetrics and Gynecology Department and director of Minimally Invasive Gynecological Surgery at UConn Health, and Elise Courtois, Ph.D., an endometriosis researcher and director of Single Cell Biology at The Jackson Laboratory, continue this important partnership to increase awareness of endometriosis and expand access to care. This group’s priorities include creating and maintaining the endometriosis data and biorepository program, facilitating endometriosis education training for healthcare providers and school nurses, and raising awareness of the disease.

EndoRISE Website Increases Understanding

Last year, during Endometriosis Awareness Month, the state’s EndoRISE Program, co-directed by Luciano and Courtois, launched a new website aimed at revolutionizing our understanding and treatment of endometriosis. The website provides patients, providers, and researchers information about the program, ways to get involved in of research and advocacy and learning.

Additional Resources

Ending Endometriosis

Hear directly from patients and learn more about how the Connecticut Endometriosis Working Group is making a difference in Connecticut and beyond.

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