The UConn Health’s Huntington’s Disease Program is committed to making advances in the diagnosis and treatment of Huntington’s Disease (HD), which affects approximately one in 10,000 men and women in the United States.
Huntington’s Disease is a neurodegenerative disorder that causes problems with emotional control, memory and movement, and eventually leads to death. It is an inherited disease that usually emerges between the ages of 30 and 50, and can also affect children and the elderly.
With a state-mandated mission to serve as an HD resource, UConn Health provides clinical care, educational outreach and research opportunities.
A range of free comprehensive services is available to patients living in Connecticut, such as genetic counseling and testing, individual and family counseling, neuropsychiatric screening, neuropsychological testing and clinical trials.
UConn Health serves as the primary resource to health care providers in Connecticut. Educational initiatives enable communities across the state to stay abreast of treatments and care for people with HD.
Clinicians and scientists are conducting cutting-edge research right here in Connecticut and collaborating with colleagues around the world. UConn is associated with the Huntington Study Group, which is a global collaboration of clinical researchers, and the Cure Huntington’s Disease Initiative (CHDI) Foundation, which is a non-profit biomedical research organization focused on developing therapies to slow the progression of HD.
The University as a whole is at the forefront in stem cell research, which holds the greatest promise for treatment advancements for Huntington’s Disease. In the first six rounds of funding through the state’s Connecticut Stem Cell Research Advisory Committee, UConn has won $30.4 million—more than any other institution. Furthermore, in fall 2010, UConn Health opened the state-of-the-art Cell and Genome Sciences Building with space for interdisciplinary stem cell research in various areas of medicine as well as business incubators to facilitate technology transfer and product development.
Private giving provides a critical foundation to build the Huntington’s Disease Program. Every gift brings us closer to finding a cure. The Huntington’s Disease Program has several top funding priorities.
- Research support: Purchase laboratory equipment, supplies and new technology; and hire top scientists.
- Clinical care support: Recruit and retain additional staff for clinical operations and care.
- Public service support: Disseminate new educational materials to patients, families and health care providers, and host symposia.
Your gift to the Huntington’s Disease Program Fund (#22807) will provide essential support to strengthen UConn Health. Please use the form on the back or visit giving.uchc.edu to make your gift today! For more information about supporting the Huntington’s Disease Program, please contact the Office of Development and Alumni Relations at 860-679-1122.