A Comprehensive Approach
The Connecticut Bleeding Disorders Center, formerly known as the UConn Hemostasis and Thrombosis Center, was established in 1979. For the past 30 years, the Center has been a part of a regionalized system of care and is affiliated with seven other centers in New England, with the goal of improving access to care and sharing services in order to maximize use of limited resources. The Connecticut Bleeding Disorders Center is located at UConn Health in Farmington, a major academic medical center and affiliate of the UConn School of Medicine. Pediatric patients receive comprehensive care at the Connecticut Children’s Medical Center in Hartford.
The Connecticut Bleeding Disorders Center at UConn Health and Connecticut Children’s Medical Center is a federally funded treatment center specializing in the care of patients with bleeding or clotting disorders. Staff members include hematologists, nurse specialists, physical therapists, social workers, dentists, orthopaedic surgeons, and a genetics counselor.
The mission of the Center is to provide comprehensive medical, nursing, physical therapy, and psychosocial services to all persons with hemophilia and other congenital coagulation disorders. The Center has participated with the national network of 129 Hemophilia Treatment Centers in implementing a national database system that is utilized for national surveillance and research of rare blood disorders, evaluation of clinical outcomes, and development of national standards of care.
The Center offers the following services:
- Diagnostic laboratory testing
- Orthopaedic and physical therapy
- Evaluations and management of procedures and surgeries
- Education and training for home treatment (self-infusion)
- Dental referrals
- Psychosocial assessments and one-on-one therapy sessions
- Coordination of multidisciplinary care with primary care physicians
- Access to clinical trials